Might is Ehlers Danlos Syndrome consciousness month. Ehlers Danlos Syndrome (EDS) is a bunch of issues of the connective tissues. Connective tissue is discovered all through the physique, so the entire physique might be affected attributable to defects within the construction and biosynthesis of collagen. There are 13 subtypes of EDS, however the commonest is Hypermobile EDS (or hEDS), which is the kind I’ve. Dysautonomia and MCAS (mast cell activation syndrome) are frequent comorbidities; I’ve each, having hit the trifecta jackpot!
Signs
The principle signs of hEDS are ache, fatigue, allergic reactions, gastric points, joint laxity, muscular ache, stretchy pores and skin, dizziness, mind fog, issues with proprioception, migraines, ADHD… In my case, this interprets as: Numerous fractures, sprains and dislocations; consistently strolling into door frames; having the ability to spot somebody carrying fragrance from 500 meters, and a mind so distracted that thirty tabs are open, lights are flashing, and the music is on full blast at anyone time. I additionally faint if I’ve to face nonetheless for any size of time, which makes for excellent enjoyable at border management! (I’m actually promoting myself right here ;-))
I used to be identified in with hEDS in late 2021, after The Vaccine exacerbated my signs to some extent the place I might not ignore them. Good vitamin is totally paramount to managing Ehlers Danlos, as so most of the problems are of a gastrointestinal and allergic nature. Making an allowance for that the intention is to scale back immune reactions, normalise intestine micro organism and assist digestion, absorption and metabolism, it’s finest to restrict sugar and refined carbohydrates, preserve processed meals to an absolute minimal and think about slicing out gluten.
Train can be key, and fortunately for me, driving is particularly useful. Issues like yoga, strolling, biking and swimming are additionally very useful, though I’ve to watch out with yoga as I’m very liable to subluxations of the hips and shoulders.
